Beckwith-Wiedemann Syndrome Support Group
Founded in 1990, the group provides information and support to families of children with Beckwith-Wiedemann Syndrome (BWS). We work with the Great Ormond Street Hospital Macroglossia Service, and with family networks around the world.
They can:
- Put you in touch with other parents who live nearby
- Help with answers to questions about BWS
- Help with information sources
Who to contact
- Telephone 01258 817573, 07889 211000
- Email bob@bwssupport.com
- Website www.bwssupport.com/
Location
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Address
The Drum and Monkey
Hazelbury Bryan
Dorset