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JABS (Justice, Awareness and Basic Support)
Jabs is a support group for parents who believe their children have suffered severe harm or have died following childhood vaccinations.
Telephone: 01942 713565
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Gauchers Association
The Gauchers Association is a registered charity which aims to promote awareness, pioneer research, and provide support and information for those affected by Gaucher disease. The Gaucher Association provides information on its website for parents as well as publishing information leaflets and two newsletters each year.
Address:
The Gauchers Association Ltd, 8 Silver Street, Dursley, Gloucestershire
Telephone: 01453 549231
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Kings Church Toddlers (KCT)
Free playgroup for under 5’s and their parents/carers with interactive music, movement, rhymes, short bible message, bubbles, crafts, free play, refreshments, toddler snack & fruit
Address:
The Furrows, Walton on Thames, Surrey
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Education Otherwise
Education Otherwise promotes and supports the right of a parent or guardian to home educate their child should they wish to do so. They offer a targeted range of services and tailored information based on proprietary research. They also liaise and work directly with individuals, public and private organisations and Government bodies.
Address:
61, Bridge Street, Kington
Telephone: 0300 124 5690 (helpline)
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Special Needs Jungle
Special Needs Jungle is a parent-led information and resources page about children and young people aged 0-25 with SEND, health conditions and rare diseases.
Telephone: Online enquiry form available through website
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Global Mediation
An independent and neutral mediation and disagreement resolution service which aims to help young people, parents and carers, LAs and others who are responsible for making special education provision reach an agreement that is in the best interest of the child or young person.
Address:
Global Mediation Ltd, Molteno House, 302, Regents Park Road, London
Telephone: 0208 441 1355
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Duchenne Family Support Group (DFSG)
The DFSG is a national charity run by families for families affected by Duchenne Muscular Dystrophy (DMD). It helps bring families together for mutual support, sharing of information and experience, and social activities, and provides a national support network for parents, their families, and professionals, they also have a helpline.
Address:
78 York Street, London
Telephone: 0800 121 4518
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Mustard Seed Autism Trust
Mustard Seed provides sensory, motor, social, communication and emotional well-being support to autistic children and their families. A small team of occupational therapists and specialist teachers deliver 1-1 or small group work, parent workshops and sibling support groups.
Children are supported in their homes or at Fairhurst Family House in Frimley Green.
Address:
Frimhurst, Guildford Road, Frimley Green, Surrey
Telephone: 07980 636413
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Education Boutique
They specialise in providing schools/Local Authorities and parents with Alternative Provision tuition to chronically disengaged disengaged SEN learners facing challenges such as school-based anxiety trauma, Emotional Based School Non-Attendance (EBSA), ASD, and learners with a PDA profile.
Telephone: 01276674172
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National Reye's Syndrome Foundation
The National Reye's Syndrome Foundation of the United Kingdom, now part of the RCPCH, was formed to provide funds for research into the cause, treatment, care and prevention of Reye's syndrome and Reye-like disorders, to inform both the public and medical communities and to provide support for parents whose children have suffered from these diseases.
Address:
15 Nicholas Gardens, Pyrford, Woking, Surrey
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